Parents of Special Children, Inc.

A United Way Agency

For Your Information

PARENTS OF SPECIAL CHILDREN, INC.

2 C Tower Drive

Fulton, New York 13069

315-598-7672

Fax 315-598-1774

Text Box: If your child with special needs has behaviors in the classroom and has been removed multiple times for those behaviors, he/she should have a FBA/BIP plan in place.
Parents of Special Children invites you join us for two parent Webinar* workshops.
Functional Behavioral Assessment (FBA)
The program will address FBA/BIP with definitions, legal requirements
and make up of a Functional Behavioral Assessment (FBA) and the
Behavioral Intervention Plan (BIP) that follows.
The key speaker is Carl Liaupsin from the University of Arizona.
September 18, 2008

Text Box: Behavioral Intervention Planning: Beyond Legal Mandates
An overview of the key components in a Functional Behavioral Assessment (FBA)
and Behavior Intervention Plan (BIP) using the positive behavior support
problem solving process (PBS).
The presenter is Sharon Lohrmann, Ph.D.
October 9, 2008
Both workshops will be from 6 to 9 pm at the PSC office

Text Box: The Functional Behavioral Assessment’s goal is to identify problem behaviors and the reasons
they occur. FBA should be considered part of the intervention process and when done well
produces an effective support plan.
The Behavioral Intervention Plan develops strategies to reduce or remove problem behaviors
and is included in the students Individualized Education Plan (IEP).

Text Box:
                                    Please use this form to register for the two workshop
     September 18, 2008-6-9pm______Number attending___________
                  Register by Sept 15th
    October 9, 2008– 6-9 pm ——— Number attending___________
                   Register by Oct 6th
    Enclosed $2.00 per person per workshop total_________________
     Checks are made payable to: Parents of Special Children, Inc
                                   2 C Tower Drive
                                                   Fulton, NY 13069
For more information please call 598-7672– Space is limited -send your
registrations and payment early to guarantee a seat.

Home-Schooled Students with Disabilities

Home-Schooled Students may now receive services from home districts

Guidance is now available on Chapter 217 of the Laws of 2008, which was signed into law by the Governor on July 7, 2008, relating to students with disabilities who are in home instruction programs pursuant to section 100.10 of the Regulations of the Commissioner of Education (home-schooled students) and are now eligible to receive special education services from their public school districts. In order to receive services in the 2008-09 school year, a parent must submit a written request for such services to the board of education of the school district of location no later than August 6, 2008 of this year.

This is available at www.vesid.nysed.gov

August 2008

Rochester Regional Center for Autism Spectrum Disorders (RRCASD)

Announcing the opening of the Rochester Regional Center for Autism Spectrum Disorders (RRCASD) The RRCASD is a community education and technical assistance center funded by the New York State Department of Education, coordinated by S.U.N.Y. Albany. The RRCASD is located at the University of Rochester, Department of Pediatrics, Strong Center for Developmental Disabilities. Its mission is to provide community education and technical assistance on evidenced-based models of practice to families, consumers, educational personnel and community providers to increase their knowledge of effective practice with individuals with autism spectrum disorders, age 4 to 21 years, and to work to improve, expand and better integrate the range of resources currently available in our region.

The RRCASD may be reached by phone 585-273-1613 or by email at rrcasd@urmc.rochester.edu to place your name on mailing list. Visit the website at www.urmc.edu/childrens-hospital/autism to learn more about the Center, link to autism related information within the region and beyond, download a copy of the current Newsletter (Posted date:May 2008) and to participate in a community-wide survey of training needs(posting date: May 2008)

Program Coordinator is Caroline I. Magyar Ph.D. and may be reach at the general number for RRCA at 585-273-1613

BuddyWalk 2008


Our 10th annual Buddy Walk will be Sunday, September 28, 2008 at Long Branch Park in Onondaga Lake Park, Liverpool. Registration begins at 9:30am. Walk starts at 10:30am. Festivities and free picnic lunch to follow. Children's games and prizes. Raffles.

Parents of Special Children, Inc.

AUTISM CONNECTION

An opportunity for families who have children on the Autism Spectrum to connect with each other.

Contact Theresa Familo for more information at 598-7672. There is no child care available at this time. Meetings will continue through the summer months.

Front Row (L-R) Theresa Familo, Marie Smith, JoAnne Tryon

Back Row (L-R) Sally Downs, Susan Church, Yvonne Krau

Autism Connections is a group that provides an opportunity for families who have children on the Autism Spectrum to connect with each other. Monthly meetings will begin again on September 9, 2008, from 7 - 9 p.m. at the office of PSC, 2 Tower Drive, Suite C, Fulton. Typically, the group meets the 1st Tuesday of each month, but September's meeting is the 2nd week due to the start of school.

TOURETTE SYNDROME ASSOCIATION

Central New York Tourette Syndrome Support Group

August 19, 2008 at 7:00 pm

The meetings are at the Baldwinsville Public Library. The contact people for this group is Karen Gadziala at 315-342-7855 or Becky Lunkenheimer at  315-635-6967 This meeting is free and refreshments will be served. Children are welcomed at the meetings. The meeting will be held the third Tuesday of each month. As the weather changes, please call one of the phone number to verify that meetings will be held.



Special Olympics and the Phoenix School District-
Special Olympics is an international program of sports training and athletic competition for more than one million children and adults with cognitive disabilities. The mission of Special Olympics is to provide sports training and athletic competition for individuals with cognitive disabilities by giving them opportunities to develop physical fitness, demonstrate courage, experience joy and participation with other Special Olympics athletes and the community.

Special Olympics and the Phoenix School District are hoping to create more opportunities for residents with disabilities from the Phoenix and the surrounding area to participate in Special Olympics sports.

Phoenix SOS (Special Olympic Sports) is a Special Olympic Sports team!! We call ourselves the Phoenix High-Fivers. Special Olympics provide sports training & competition for individuals with intellectual disabilities at no cost to the athlete or their family. It is a very inclusive, supportive, worldwide organization. Today, Special Olympics New York is the largest program of its type in the United States, serving nearly 40,000 athletes with the support of over 30,000 volunteers.
Special Olympics give Athletes an opportunity to; develop new skills, be part of a team, become more confident, increase self-esteem and respect, meet new friends, enhance social skills and become proud of their accomplishments. Their joy and enthusiasm is heartwarming and very contagious.

Practices are held at JCB:

Fall:      Soccer (Sept & October)

Winter: Floor Hockey (Nov – Feb)

Spring: Basketball (March- June)

Coaches:

Rick Pelc              343-6524 (home)

Peggy Pelc          343-6524 (home)

We meet year round and change sports each season. We also have dances, picnics, fun matches and fundraisers. There are many volunteer opportunities!! (just call one of the coaches to learn more)

Please call to join and get a consent form.

For more information about Special Olympics: www.specialolympicsnewyork.org.

IF SCHOOL IS CLOSED OR AFTER SCHOOL ACTIVITIES CANCELED: PRACTICE WILL BE CANCELED TOO

.There are on going activity that is active through out the year. If you are interested in Special Olympics check the site below for more information.
Special Olympics Schedules

Workshops

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SPECTRUM PARENT SUPPORT GROUP MEETING

The SPECTRUM Parent Support group meeting will be meeting at the First Universalist Church on January 10^th from 6:30-8:30. The group is open for all parents in any district that have a child with any type of disability. There will be a short presentation and then a time for everyone to share concerns and ideas.

The meeting will focus on the need for parents to document requests for services through their school. Handouts will be available of specific letters that can be sent.

While the parents are at the SPECTRUM meeting their teenagers can join in with the new social group if they would like.

If you have any questions you can call Vicki at 668-4231 ext. 2108.

The First Universalist Church is located on Route 49 right in Central Square. It is adjacent to the Bank of America and you may park in their parking lot. The building is wheelchair accessible.

CENTRAL SQUARE SOCIAL GROUP

The Central Square Social Group will be meeting at the First Universalist Church on January 10^th from 6:30-8:30. We want to invite all people that are 13-25 to join us for some fun and socializing. The group is sponsored by ARISE and is open to anyone with any type of disability. You do not have to attend Central Square Schools to attend this fun activity. If you would like more information on the social group you can call 406-3630 or 668-4231 ext. 2108.

The First Universalist Church is located on Route 49 right in Central Square. It is adjacent to the Bank of America and you may park in their parking lot. The building is wheelchair access

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CNY ASA Update

July Event Reminder!

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-- CNY ASA News

-- Items of Interest

-- Speakers, Workshops and Conferences - CNY Area

-- Speakers, Workshops and Conferences - Beyond CNY

-- Future Meetings

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CNY ASA News

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SAVE THE DATE!
Outside the Box: Alternative Approaches to Solving the Autism Puzzle.
August 10.
Speakers:

Doris Rapp, MD, FAAP, FAAA, FAAEM
Karen L. DeFelice, MSc
Kenneth A. Bock, MD, FAAFP, FACN, CNS

Presented by: Natur-Tyme.
Drumlins Country Club, Syracuse, NY.
CNY ASA is pleased to be a sponsor of this informative event.
Visit the Natur-Tyme website. More details and registration information coming soon!

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Items of Interest

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Unique as Pete: How Autism Does Not Mean Different.
Click here to visit Amazon.com and learn about this new book.

Alphabet Beats.
Alphabet Beats are fun, educational videos that teach children how to write the alphabet quickly and easily!
Click here for more information.

The Autism Rights Movement.
Click here to read the New York Magazine article.

Pope Urged to Act on Autism After Minnesota Church Ban.
Click here to read the Christian Today article.

Sick Monkeys: Research Links Vaccine Load, Autism Signs.
Click here to read the article by "Age of Autism" author Dan Olmsted.

How Safe Are Vaccines?
Click here to read the TIME Magazine article.

Speakers, Workshops and Conferences - CNY Area

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Autism Symposium.
August 18 - August 19.
Statler Hotel, Cornell University, Ithaca, NY.
For more information, click here.

Attention, Language Processing and Sensorimotor Disorders in Children: New Integrative Approaches to Assessment and Intervention.
September 12.
Syracuse Renaissance Hotel and Conference Center , Syracuse, NY.
For more information, click here.

Exploring Autism 2008: Emotional Self- Regulation in Children, Adolescents and Adults on the Autism Spectrum.
Speaker: Isabelle Hénault, Ph. D.
October 25.
Holiday Inn Syracuse/Liverpool, NY.
For more information, click here.

Speakers, Workshops and Conferences - Beyond CNY

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Autism Summit 2008.
October 10 - October 12.
The Renaissance Cleveland Hotel, Cleveland, OH.
For more information, click here.

Autism: Update on Diagnosis and Intervention Through Adolescence.
October 23 - October 24.
Sheppard Pratt Conference Center, Baltimore, MD.
For more information, click here.

2008 Pittsburgh Autism Expo.
October 24 - October 25.
Crowne Plaza Hotel: Pittsburgh Airport, Pittsburgh, PA.
For more information, click here.

National Autism Conference.
November 13 - November 16.
Hyatt Regency Bonaventure Conference Center & Spa, Fort Lauderdale, FL.
For more information, click here.

If you have an event that you would like listed in our "Items of Interest" or "Speakers, Workshops and Conferences" sections, please send an e- mail, including all the pertinent information, to: cnyasa@yahoo.com

Future Meetings

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Monthly meetings will resume again in the fall. Mark your calendars!

Meetings are held on the first Thursday of each month (October 2008 through June 2009, excluding January 2009) from 7:00pm - 9:00pm in the Jowonio School Community Room (3049 E. Genesee St. Syracuse, NY):

October 2, 2008
November 6, 2008
December 4, 2008
February 5, 2009
March 5, 2009
April 2, 2009
May 7, 2009 June 4, 2009

Tips

Tips of the Day - Safety at Home

To prevent your child from locking himself in his room, reverse the locks on his door so that the locking mechanism is on the outside.
If your child climbs on furniture, attach bookcases and curio cabinets to the wall.
Wrap a ribbon tied in a square knot around cabinet handles; it will only get tighter if pulled on.
Put away anything you do not want broken.
Put a chain lock near the top of your doors to prevent your child from exiting without your knowledge.
Install a door chime or bell that sounds when an exit door is opened.
Staple chicken wire to the inside of a wooden fence to prevent your child from leaving your yard without your knowledge.

Oswego County Bar Association Volunteer Legal Clinic

What: Free legal consultation with an attorney, and referrals if further legal assistance is needed.

When: Every Friday, 2-4 p.m.

Where: Fourth floor of the Oswego County Office Building, 46 East Bridge St. Oswego.

No appointment needed

Call:315-806-6164